1 detachable folded treatment record in back of book.

1.Diagnosis 1 -- Signs and symptoms 1 -- Where should your child receive treatment? 3 -- Physical responses 4 -- Emotional responses 4 -- Immediate future 11 -- 2. Leukemia 14 -- Leukemia is a disease of the blood 14 -- Who gets leukemia 16 -- Diagnosing leukemia 18 -- Best treatments for leukemia 19 -- Types of leukemia 20 -- Acute lymphoblastic leukemia (ALL) 20 -- Acute myeloid leukemia (AML) 27 -- Chronic myelogenous leukemia (CML) 32 -- Juvenile myelomonocytic leukemia (JMML) 34 -- Telling your child 35 -- 3. Coping with Procedures 41 -- Planning for procedures 41 -- Pain management 44 -- Procedures 50 -- 4. Clinical Trials 67 -- Enrollment in clinical trials 68 -- Standard treatment 68 -- Types of clinical trials 69 -- Randomization 70 -- Design of clinical trials 71 -- Supervision of clinical trials 72 -- Questions to ask about clinical trials 72 -- Informed consent 73 -- Assent 75 -- Protocol 76 -- Entire trial document 78 -- Saying no to a clinical trial 79 -- Removing a child from a clinical trial 79 -- Pros and cons of clinical trials 80 -- 5. Family and Friends 82 -- Extended family 82 -- Friends 88 -- Restructuring family life 98 -- 6. Forming a Partnership with the Medical Team 106 -- Hospital 106 -- Finding an oncologist 109 -- Choosing a hospital 110 -- Types of relationships 110 -- Communication 112 -- Getting a second opinion 117 -- Conflict resolution 119 -- Changing doctors 121 -- 7. Hospitalization 123 -- Room 123 -- Food 125 -- Parking 126 -- Endless waiting 127 -- Befriending the staff 128 -- Being an advocate for your child 129 -- Playing 131 -- 8. Venous Catheters 134 -- External catheter 134 -- Subcutaneous port 140 -- Peripherally inserted central catheters 145 -- Cost 148 -- Choosing not to use a catheter 148 -- Making a decision 149 -- Adhesives 150 -- 9. Sources of Support 153 -- Hospital social workers 154 -- Support groups for parents 155 -- Support groups for children with cancer 158 -- Support groups for siblings 159 -- Parent-to-parent programs 160 -- Hospital resource rooms 161 -- Clergy and religious community 161 -- Individual and family counseling 163 -- Camps 168 -- 10. Chemotherapy 171 -- How chemotherapy drugs work 171 -- How chemotherapy drugs are given 172 -- Dosages 173 -- Chemotherapy drugs and their possible side effects 173 -- Prophylactic antibiotics 194 -- Colony-stimulating factors 195 -- Antinausea drugs used during chemotherapy 196 -- Drugs used to relieve pain 200 -- Local anesthetics to prevent pain 205 -- Adjunctive treatments 205 -- Alternative treatments 206 -- 11. Common Side Effects of Chemotherapy 210 -- Hair loss 210 -- Nausea and vomiting 213 -- Low blood counts 215 -- Diarrhea 223 -- Constipation 224 -- Fatigue and weakness 226 -- Bed wetting 228 -- Dental problems 230 -- Mouth and throat sores 231 -- Changes in taste and smell 232 -- Skin and nail problems 233 -- Steroid problems 234 -- Learning disabilities 234 -- Eating problems 234 -- 12. Radiation Therapy 236 -- Radiation 236 -- Types of radiation treatments 242 -- Possible short-term side effects 245 -- Possible long-term side effects 247 -- 13. Record-Keeping and Finances 251 -- Keeping medical records 251 -- Keeping financial records 255 -- Coping with insurance 261 -- Sources of financial assistance 265 -- 14. Nutrition 269 -- Treatment side effects and eating 269 -- A balanced diet 272 -- Vitamin supplements 274 -- Making eating fun and nutritious 275 -- What kids really eat 280 -- Parent advice 282 -- Commercial nutritional supplements 283 -- Feeding by tube and IV 285 -- 15. School 288 -- Keeping the school informed about treatment 288 -- Keeping teacher and classmates involved 289 -- Keeping up with schoolwork 290 -- Siblings need help, too 292 -- Returning to school 292 -- Avoiding communicable diseases 296 -- What about preschoolers? 297 -- Identifying cognitive late effects 299 -- Record-keeping 310 -- Terminally ill child and school 310 -- On acepting disabilities 312 -- 16. Siblings 313 -- Telling the sibling 313 -- Emotional responses of the siblings 315 -- Sibling experiences 320 -- Helping siblings cope 329 -- Positive outcomes for the siblings 333 -- 17. Feelings, Communication, and Behavior 335 -- Feelings 335 -- Communication 337 -- Common behavioral changes of children 339 -- Common behavioral changes of parents 344 -- Improving communication and discipline 349 -- 18. End of Treatment and Beyond 357 -- Emotional issues 357 -- Last day of treatment 359 -- Catheter removal 361 -- Ceremonies 362 -- What is normal? 365 -- Follow-up care 368 -- Keeping the doctor informed 376 -- Employment 378 -- Military 380 -- Insurance 380 -- 19. Relapse 383 -- Signs and symptoms 383 -- Emotional responses 386 -- Deciding on a treatment plan 387 -- 20. Stem Cell Transplantation 393 -- When are transplants necessary? 393 -- Types of transplants 395 -- Finding a donor 400 -- Choosing a transplant center 402 -- Paying for the transplant 404 -- Donating marrow 406 -- Transplant 407 -- Emotional responses 409 -- Complications 410 -- Long-term side effects 416 -- 21. Death and Bereavement 421 -- Transitioning from active treatment 421 -- Supportive care 425 -- Dying in the hospital 426 -- Dying at home 428 -- Siblings 429 -- Funeral 430 -- Role of family and friends 431 -- Sibling grief 438 -- Parental grief 440 -- Looking back after many years 446 -- A. Photographs of Our Children 449 -- B. Blood Counts and What They Mean 455.